I do not like to blow things out of proportion like the typical mainstream media, but this has not been heavily publicized and needs to be said.
I firmly believe that there is an epidemic on the Appalachian Trail. I haven’t thru-hiked the Appalachian Trail since the winter of 2005/2006. However as an active member in the long distance hiking community, I receive reports from various sources and feel it is my responsibility to write this post.
I would estimate that at least 30% of the thru-hikers on the AT, and probably more than 40%, are contracting Lyme Disease – many undiagnosed. The AT passes through grassy fields and woodlands while traversing prime Lyme territory. I remember days, where I pulled hundreds of ticks off Yoni. Since there were so many, they would crawl back on to her while I was pulling them off. I started dropping them into my fuel bottle so I wouldn’t have to pull them off twice. There was a sick, masochistic feeling. After an hour my denatured alcohol bottle was so thick with ticks that it looked almost like clear bubble tea. Each evening I would pour some out into my tuna can stove when I cooked dinner and get some extra satisfaction.
Lyme is scary for many reasons. The first is that many of the symptoms can be commonly mistaken for general hiker/thru-hiker maladies – joint pain, muscle aches, headaches, stiff neck, and fatigue. Who hasn’t been tired one day, had muscle aches, joint pain, or a headache on a hot day or dry stretch? (The infamous and telltale bulls-eye rash does not always occur – and if it does you are one of the lucky ones since it is easier and quicker to diagnose). Many deer ticks, especially the nymphs, can be much smaller than a sesame seed.
It’s also a tricky little bugger and commonly gets false negatives in the CDC approved blood test. Currently the CDC evaluates medical studies every 5 years. They are oddly disconnected from the beliefs of many Lyme Literate Medical Doctors (LLMDs).
Most LLMDs believe that Lyme can sit dormant if not treated immediately. The bacteria can “hide” from your immune system and come out at a later time when your immune system is weakened. This can make it very difficult to diagnose and treat. The CDC does not currently believe that there is anything considered “Chronic Lyme” or “Long Standing Lyme”. I have had multiple friends that I met on the AT get diagnosed years after their thru-hikes.
Furthermore, many LLMDs also acknowledge that Lyme is often accompanied by a co-infection. If you catch it early these are both treated together with antibiotics. If yopu wait these can be much harder to treat. Some common co-infections include ehrlichiosis and babesiosis. The Igenix blood test will also test for some co-infections, unlike the common Lyme blood test approved by the CDC.
Keep in mind that many doctors in your area might not be aware of Lyme. It could be up to you to self-diagnose and let your doctor know that you have hiked the AT or in a Lyme prevalent area. The range is currently spreading, with the Midwest being the fastest growing region, but Lyme has been reported in much of the country and even Europe and South America. Statistics could be skewed because of false reporting or misdiagnosis. I live in California and many doctors would not even think of Lyme Disease for a diagnosis, even though there have been reported cases in the foothills of the Sierras, Coastal Range, and other areas.
None of the recommendations below are fool proof but I recommend taking proper precautions and being extra careful:
- Wear light colored clothing to make it easier to spot ticks crawling on you.
- Do daily body checks. If you are thru-hiking, get in the routine of doing body checks every evening/night before you go to sleep and quick scans at breaks. Make sure to check warm areas, like arm pits, head, behind your knees, and groin. Often you can find ticks crawling on you before they bite you. If they have bitten you and you get the tick off before 24 hours, then you have little to no chance of contracting Lyme. After 24 hours your chance increases. If the tick has been in you for three or more days, you probably contracted Lyme — if the tick has it. For reference, in Southern NY near where the AT passes through, 25% of the deer ticks currently spread Lyme.
- If you develop a bulls-eye or are worried about a tick bit, go to a doctor as soon as possible. Pull the tick out and save it if you can.
- Keep the symptoms in mind and if fatigue, muscle aches, or joint pain are at all abnormal or longer lasting than usual don’t hesitate to visit a doctor.
- This may seem a little far-fetched since it can cost upwards of $350–500, but I would consider factoring this into your budget. If I ever hike the AT again I will probably get the Lyme blood test immediately upon completion of the AT.
If you are hiking with a dog, I would recommend preventative measures. There is a dog Lyme vaccine and Frontline type products work great. I wish they had these for people!
Tip: When you are pulling the tick out try to get it as close to the head as possible. The infections, like Lyme, are usually stored in the ticks body. After the tick bites you the fluids start to move from the body to the head. That’s why you typically have 24 hours to remove the tick before it would spread an infection to you. If you can get the entire tick out that is good, but if you rip the head off at least you have killed the tick and stopped the transfer of bacteria toward its head — if it is a fresh bite.